We met our pediatric cardiologist on August 3, 2010. She performed a fetal echo cardiogram and followed up on the diagnosis we were given prior to this day. Sure enough, the words hypoplastic left heart syndrome came rolling off her tongue! She drew us diagrams of a normal heart vs an HLHS heart, and explained how each worked. She also drew us diagrams of how this condition will be fixed. The first open heart surgery is called the Norwood. This surgery will be done 3-5 days after delivery. The 2nd surgery is called the hemi-fontan aka the Glenn Shunt procedure. Depending on the baby, this surgery will be performed between ages 4-8 months. The last procedure is called the Fontan procedure, and this is usually done between ages 18-24 months of age. After all 3 surgeries are performed, there is still a possible chance of the child having a heart transplant in it's later years.
The pediatric cardiologist definitely shed some light us on, and gave us more hope than what the doctor had given us. She sounded pretty confident in the CV surgeon and the team here at St. Vincent. Of course I did my own research and found out that this hospital has the 3rd lowest mortality rate in the entire nation! That seems like a really good outcome for the patients! I was also told from other HLHS families that the CV surgeon at the children's hospital is one of the best in the nation. Can't wait to meet him! :)
We are scheduled for a follow up echo cardiogram because our baby likes to hide his heart from the professionals, so the cardiologist wants to try and get one last echo in before he gets too big!