Took daylen to see his cardio today and everything looked really good. His sats were 94, they said he had no symptoms of fluid build up but checked anyway on echo. During his echo, the cardio came in and showed me Daylens conduit fenestration which was hard to locate but looked really cool.
We will go back this winter for another check up :)
Lasix were decreased to once a day instead of twice at 1.3 ml ..aspirin kept the same (81 mg daily)
We got to go home on day 14 of being post fontan! Our day started at 8 am when the surgeon came in to remove daylens chest tube. Poor guy. We then had an echo done on daylens heart which looked amazing. After that, we got sent down for an xray! At about 330pm we were given the ok to go home! Of course we already had most of our stuff packed so we booked out of there as soon as we could!
Daylen went home on lasix, aldactone, and aspirin. He also has a script for lortab but we prob wont fill that.
I think the biggest thing Daylen was excited about was the fact that he was wearing shoes again :) he needed to show everyone!
We are so glad to be home and finally have our youngest back :)
Thanks everyone for following our story so far and praying for my sweer boy!
Ill update again after our follow up appointment in a week!
Daylen had a great day today :) fluid today was at a total if 67 ml ..thats barely over 2 oz for the day which is awesome!
Oxygen canula came off today - major step!
Daylen was able to go to the playroom several times and also went outside to the playground :)
Word on the street has it that chest tube will come out tomorrow along with a final chest xray! Will keep everyone posted :)
We are currently off of oxygen as of 3pm and even with fluid build up, Daylen has maintained good SAT levels so far unless he gets angry.
Fluid drainage today was 107 ml which means we will not be going home tomorrow for labor day.
Daylen did get to meet thr other 2 boys here with hlhs that also had their fontans. Their names are Hunter and Carter and both are adorably cute and 2 years old!
