Tuesday, June 28, 2011

Neurology and genetics appointment

Last week Daylen had an appointment with the neurology center to see how his growth and development was. They did a few tests on him and turns out he scored very well for a heart baby! His motos skills reached a high of 115% meaning he's doing things that babies a month ahead of him are doing! Physically he is measuring to be his age. They were very pleased with him and asked to see him again in 6 months! He weighed a good 17 lbs and 4 oz and measured 26 in long.

While at the neurology center, Dr. Escobar recommended we do a genetics test on him to see if his birth defect happened genetically or if it just happened. They can determine if our future children will have higher chances of having birth defects too. I am anxious to hear the results because I am not sure if I can handle another HLHS baby. As much as we love Daylen, its very hard to deal with and who is to say if the next one doesnt have a worst case of it. We will keep you all updated as soon as we hear anything in the next week.

Friday, June 10, 2011




Since Daylen was 2 months old, I thought he was teething and THOUGHT he was going to be an early sprouter but I was wrong...... I was very wrong!

5 months go by of him fussing and chewing on everything from toys, bibs, clothes, my arms, face, and just about anything! Well his 7 month birthday is tomorrow and today I saw his first tooth showing! :)

7 month cardiology appointment

It's been a little over 2 months since Daylen had his hemi-fontan surgery and he recently had his 2nd cardiology visit since then!

They took an EKG of his heart and it all came back great! His OSAT's were 86 and his blood pressure was in normal range! :)

They were going to skip over the echocardiogram but Dr. Parikh decided he wanted some updated pictures of the glenn so thats what went down! Everything looked great and Dr. Parikh couldn't have been happier with him!

He mentioned his baby eczema (just like every visit) and said since he is older than 6 months now, his skin condition will probably stay til Daylen is around 2 years old. UGHHHH! but oh well! I've kept the rashes to a minimum so thats all that matters!

Other than that, all is gravy with lil Daylen Lee!