We are so ready to get outta here :( too bad we cant!
Daylen drained about 180 ml of fluid today which is 6 oz :/ hopefully its less tomorrow so that we can at least be home by the weekend!
Daylens oxygen was decreased to .25L and he occasionally reaches the 90's.
We were able to go to the playroom but you can tell Daylen barely had any energy :( he took a 3 hr nap after. Poor thing