Saturday, April 13, 2013


At 2.5 years old, Daylens color is more blue these days. His lips and fingertips turn purple pretty quickly. Apparently this is normal and just means Daylen is ready for the fontan! We have a cardiologist app on Thursday. After that, we will know a time and date for the last n final surgery!

My emotions over this are all over the place! I'm upset for the surgery and upset that he has to go thru this...but I'm looking forward to him being done with this.

I will update everyone when we find out more information!

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