In the last 3 years prior to Daylens last surgery, he barely spoke, maybe 25 words at most. We tried really hard to get him to speak but he mostly just mumbled everything together. I was told by several mom's that their boys speech took off after the fontan so I patiently waited. Sure enough after his surgery, even in those 2 weeks he started speaking more.
For the first time today, Daylen counted to 10 all by himself :) this makes me so happy!
We are 5 months post fontan and just had a routine check up with the cardiologist. Daylen had sat levels up to 88 which wasn't exactly what I wanted to see. I assumed his oxygen would be close to 100 but I guess I'll be happy with it if the cardio saw no issue. He had an echo done and they saw zero fluid around his heart. Dr Parikh stopped his lasix and has his aspirin as 5-6 days a week.
Daylen also got the thumbs up to fly overseas to visit family in Germany and meet them for the first time ever. We just may need a prescription for oxygen b4 we fly out but that'll be a later discussion.
Daylen doesn't have to be seen for another year :)) woohoo!